#108

Ben Brandenburg

ALS Took His Body. It Didn’t Take His Purpose.

health
Leadership

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Description

Ben Brandenburg spent his career behind the scenes in elite college athletics, helping others perform at the highest level. In 2021, he was diagnosed with ALS, a progressive disease that steadily takes away the body’s ability to move. In this conversation, Ben describes what it is like to live through that loss in real time. Not as a series of good days and bad days, but as a constant, irreversible decline. He reflects on losing independence, confronting limits that effort cannot overcome, and redefining purpose as control disappears. The discussion moves beyond illness into deeper questions. What remains when discipline no longer works. How identity changes when the future contracts. What it means to lead a family when you can no longer act physically. And how faith, responsibility, and meaning evolve under pressure. This is not a story about overcoming ALS. It is a conversation about how to live when it cannot be overcome.

This podcast is a proud part of ElevenLabs’ mission to help 1 million people reclaim their voice, especially those living with neurodegenerative diseases.

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